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Helpful links for
Patients and Families
Print Publications
Books
Children with Facial Differences: A Parent's Guide
Hope Charkins
Woodbine House, 1996 (available in paperback)
[ Amazon ]
Connor's Book
A homemade book about Apert Syndrome
A Parent's Guide to Cleft Lip and Palate
University of Minnesota Guides to Birth and Childhood DisordersKarlind T. Moller, Clark D. Starr, Sylvia A. Johnson
[ Amazon ]
University of Minnesota Press, 1990
Your Cleft-Affected Child:
The Complete Book of Information, Resources, and HopeCarrie Gruman-Trinkner, Blaise Winter
[ Amazon ]
Publisher's Group West, 2001 (available in paperback)
Babyface: A Story of Heart and Bones
Jeanne McDermott
Amazon.com
Woodbine House, 2000
Funny Face
Deborah Breslow
2001 (funnyfacestory@aol.com)
Sam: The Boy Behind the Mask
Tom Hallman, Jr.
[ Amazon ]
G.P. Putnam's Sons, 2002
Rosey… The Imperfect Angel
Sandra Lee Peckinpah
[ Amazon ]
Scholars Press, 1991
You Are Special
Max Lucado, Sergio Martinez
[ Amazon ]
Crossways Books, 1997
David's Story:
A Book About Surgery (Meeting the Challenge)Benjamin Brink
[ Amazon ]
Lerner Publications Company, 1996
Brochures and Articles
Information for Parents About Cleft Lip and Cleft Palate
Children's Hospital Boston
300 Longwood Avenue, Boston, MA 02115
Dental Brochure and Timeline
Dental care for your child with cleft lip and palate
"Information for Parents"
Booklets by John B. Mulliken, M.D., on:
Download this PDF Deformational Plagiocephaly
Download this PDF Hemifacial Microsomia
Download this PDF Single-Suture Craniosynostosis
Download this PDF Treacher Collins Syndrome
Children's Hospital Boston,
Craniofacial Centre, 300 Longwood Avenue, Boston, MA 02115
"Hemangiomas and Vascular Malformations,"
Cleft Palate Foundation,
104 South Estes Drive, Suite 204, Chapel Hill, NC 27514
"Möbius Syndrome,"
Cleft Palate Foundation,
104 South Estes Drive, Suite 204, Chapel Hill, NC 27514
"As You Get Older: Information for Teens Born with Cleft Lip and Palate,"
Cleft Palate Foundation,
104 South Estes Drive, Suite 204, Chapel Hill, NC 27514
"Treacher Collins Syndrome: An Overview,"
Treacher Collins Foundation,
P.O. Box 683, Norwich, Vermont 05055-0683
"Resources for People with Facial Difference,"
Box 29972, Bellingham, WA 98228-1972
(also available online at http://www.faceit.org)
"Parameters for Evaluation and Treatment of Patients with Cleft Lip/Palate or Other Craniofacial Anomalies,"
104 South Estes Drive, Suite 204, Chapel Hill, NC 27514
"What's In a Face?" Personal stories about children with craniofacial disorders.
By Deborah J. Breslow http://parentguidenews.com/articles/August08/What%27sInAFace.php