Cleft Lip
Questions
- What is Cleft Lip?
- Why was my child born with a cleft lip?
- What are the chances of my future children having cleft lip?
Repairs
What is cleft lip?
Cleft lip is an opening in the skin and muscle between the nose and upper lip; often the gum ridge is also involved. During the first four to six weeks of pregnancy, the skin and muscle normally grow in from the sides of the face to join with skin growing down from the tip of the nose. If these parts fail to join, the baby is born with a cleft lip. There are several types of cleft lip, depending on which portions of the skin have joined. The cleft can be on one side (unilateral) or on both sides (bilateral).
Why was my child born with a cleft lip?
In most cases, there is no known family history, although some children born with a cleft lip have one or more relatives with the condition. Some researchers believe that environmental factors play a role. A specialist on your child's care team can discuss these factors with you.
What are the chances that any future children will have a cleft lip?
The chances are different for each family. The members of your child's care team, especially the geneticist, will give you a more detailed answer to this question. Research indicates that certain precautions may reduce the chance of developmental anomalies. Prior to conception, mothers should be sure to take a daily multivitamin that includes folic acid. Avoid alcohol, smoking, and medications. (If you must take medication, discuss it with your physician.)
Can a cleft lip be repaired?
Yes. An operation can correct the cleft so that your child's mouth and nose will be nearly normal in appearance and function.
When will my child's cleft lip be repaired?
Usually before your child is six months old. The plastic surgeon on your child's care team will talk with you about the best surgical plan for your child.
How is a cleft lip repaired?
Some types of cleft lip can be repaired in one operation; others require more procedures. The plastic surgeon will use existing muscle and tissue from your child's lip to close the cleft and correct the nose. The procedure is performed in an operating room under general anesthesia. Your child will stay in the hospital one or two nights after the operation. Parents are encouraged to stay with the child in the hospital. The nurse will teach you how to care for your child after the procedure.
An incomplete cleft lip is usually repaired in one operation when a child is three to four months old. During this procedure, the plastic surgeon will close the cleft of the lip and shape the nose.
Closure of a unilateral complete cleft lip can be performed in either one or two steps. The gum is closed as well. For a standard repair, the first operation is done at three to four months of age and is a simple closure of the lip along with the first stage of nasal correction. The cleft of the gums is also closed, whenever possible. The second operation, done at about four to six months, is a more comprehensive repair of the cleft lip and correction of the nose.
Repair of a bilateral complete cleft lip usually requires one operation at four to six months of age. The nose is corrected at the same time as the closure of the cleft lip.
In many treatment centers, a dental appliance may be recommended for the infant with a complete cleft lip, either unilateral or bilateral. The appliance can be active or passive, and it helps to align the gums. It is custom-made for your child, and requires regular adjustments until the gums are in the correct position for cleft lip repair. The appliance is removed in the operating room just prior to closure of the lip.
Will my child look normal after the cleft lip is repaired?
After the operation the lip, nose, and face may be swollen for several days. The scar may be red for several weeks. It will take six to 12 months for the scar to soften and fade. Although the scar will never disappear, it should become difficult to see. Your child's lip and nose will be nearly normal in appearance.
As my child gets older, will he or she need another operation on the lip or nose?
In some cases, the nose cannot be permanently corrected in one operation. As your child grows, the lip and/or nose may change in shape and appearance. Revisions may be needed before your child begins school or during adolescence. In some cases, however, revision of the nose or lip is never necessary.
Recommended Reading
- VIDEO Understanding Cleft Lip & Palate: Guide for New Parents
- Learn More
- Request a Free Copy
- WEBSITE Cleft Palate Foundation
- cleftline.org
- WEBSITE Cleft Advocate
- cleftadvocate.org
- VIDEO Cómo Entender La Condición De Labio Y Paladar Hendido: Una Guía Para Los Padres
- Learn More
- Solicite una Copia Libre
- WEBSITE Center for Children with Special Needs, Seattle WA.
Critical Elements of Care: Cleft Lip and Palate, 2000 - www.cshcn.org/forms/CLP_CEC.pdf
