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About Us

 

Leadership

The leadership of the Foundation is composed of many dedicated professionals, parents, affected adults and other interested individuals who recognize the importance of providing access to the best information and guidance in order to help the families of affected children find quality care. They all serve on a volunteer basis, and their many different viewpoints inform the shaping of policy and guidance of the organization.

Board of Directors

    •       John (Jack) Condon
    •       President
    •       Huntington, NY
      •       Ann-Marie Rogers
      •       Executive Vice-President
      •       Framingham, MA
        •       Alfred (Fred) C. Frawley, III
        •       Clerk
        •       North Yarmouth, ME
          •       William (Bill) Pratt
          •       Treasurer
          •       South Weymouth, MA
            •       Patricia (Tricia) Connery
            •       Recording Secretary & VP of Communications
            •       Maynard, MA
              •       Mary Lania, RN
              •       VP of Programming
              •       Westwood, MA
              •       Meera Oliva
              •       VP of Fundraising
              •       Newton, MA
              •       John B. Mulliken, MD
              •       Co-Founder
              •       Brookline, MA
                •       Dorothy (Dotty) M. MacDonald, RN, BSN
                •       Braintree, MA
                  •       Kara Jackman
                  •       Braintree, MA
                    •       Adrianne Musto
                    •       Mansfield, MA
                      •       Bari Popkin
                      •       Needham, MA
                        •       Ursula Costigan, Esq.
                        •       Amesbury, MA
                          •       Monir Sakha
                          •       Framingham, MA