About Us



The leadership of the Foundation is composed of many dedicated professionals, parents, affected adults and other interested individuals who recognize the importance of providing access to the best information and guidance in order to help the families of affected children find quality care. They all serve on a volunteer basis, and their many different viewpoints inform the shaping of policy and guidance of the organization.

Board of Directors

    •       John (Jack) Condon
    •       President
    •       Huntington, NY
      •       Ann-Marie Rogers
      •       Executive Vice-President
      •       Framingham, MA
        •       Alfred (Fred) C. Frawley, III
        •       Clerk
        •       North Yarmouth, ME
          •       William (Bill) Pratt
          •       Treasurer
          •       South Weymouth, MA
            •       Joseph (Joe) Carroll
            •       Assistant Treasurer
            •       Stoneham, MA
              •       Patricia (Tricia) Connery
              •       Recording Secretary & VP of Communications
              •       Maynard, MA
                •       Mary Lania, RN
                •       VP of Programming
                •       Westwood, MA
                  •       John B. Mulliken, MD
                  •       Co-Founder
                  •       Brookline, MA
                    •       Dorothy (Dotty) M. MacDonald, RN, BSN
                    •       Braintree, MA
                      •       Olivia Beaudouin, RN
                      •       Medway, MA
                        •       Ursula Costigan, Esq.
                        •       Amesbury, MA
                          •       Michael Greiner
                          •       Lexington, MA
                            •       Monir Sakha
                            •       Framingham, MA
                              •       Elizabeth Ross, DDS
                              •       Needham, MA
                                •       Rick Bellew
                                •       Wellesley, MA