Leadership
The leadership of the Foundation is composed of many dedicated professionals, parents, affected adults and other interested individuals who recognize the importance of providing access to the best information and guidance in order to help the families of affected children find quality care. They all serve on a volunteer basis, and their many different viewpoints inform the shaping of policy and guidance of the organization.
Board of Directors
Officers
- Attorney Johanna (Joey) Smith
- President
- Belmont, Massachusetts
- Ron Parkinson
- Treasurer
- Newton, Massachusetts
Attorney Alfred C. Frawley- Clerk
- Portland, Maine
Kara Jackman- Recording Secretary
- Braintree, Massachusetts
- John M. Condon
- Huntington, New York
- Anne-Marie Gagnon, MSW
- Natick, Massachusetts
- Mary Lania, RN
- Westwood, Massachusetts
- Dorothy M. MacDonald, RN, BSN
- Braintree, Massachusetts
- John B. Mulliken, MD
- Brookline, Massachusetts
- Katherine Murphy
- Boston, Massachusetts
- Adrianne Musto
- Mansfield, Massachusetts
- Meera Oliva
- Brookline, Massachusetts
- Bari Popkin
- Needham, Massachusetts
- Ann-Marie Rogers
- Framingham, Massachusetts
Staff
- Mairi Bleakie
- Director
- Hingham, Massachusetts